Rare Diseases Registries Projects’ Kick-off Meeting
On the 17th of April 2018 the representatives of all U-IMD beneficiaries participated in the Rare Diseases Registries Projects’ Kick-off Meeting in Luxembourg. The U-IMD Coordinator presented the outlines of the project to the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) and the others parties funded under the call HP-PJ-06-2016.