2018 MetabERN Board Meeting

On the 9th of April 2018 the U-IMD Coordinator presented the outlines of the project to the members of MetabERN during the course of a U-IMD focused session that was part of the official program of the 2018 MetabERN Board Meeting.

Rare Diseases Registries Projects' Kick-off Meeting

On the 17th of April 2018 the representatives of all U-IMD beneficiaries participated in the Rare Diseases Registries Projects' Kick-off Meeting in Luxembourg. The U-IMD Coordinator presented the outlines of the project to the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) and the others parties funded under the call HP-PJ-06-2016.