Collaboration with ERNs
Coordinator and associated partners
How to submit patient data
Who can participate in U-IMD
Diseases in U-IMD
Patients and families
First publication in the works
U-IMD reached the critical milestone of enrolling more than 1000 patients
The U-IMD protocol was successfully amended for a longer runtime. The official end of the EU funded phase of the project is now 31.07.2021
Poster Presentation of U-IMD at the SSIEM 2019.
First meeting of the U-IMD Evaluation Group at the EMG meeting in May 2019 in Lyon.
Official launch of the U-IMD registry in May 2019.
First meeting of the U-IMD Members Board at the MetabERN Meeting 2019.
Data gathering for the first natural history studies using U-IMD data has started
2018 MetabERN Board Meeting
Rare Diseases Registries Projects' Kick-off Meeting