Publications of U-IMD consortium

The first publication introduces the registry, network and summarizes progress Opladen T, Gleich F, Kozich V, Scarpa M, Martinelli D, Schaefer F,...

U-IMD reached the critical milestone of enrolling more than 1000 patients

As of August 2020 1047 patients with 171 different rare metabolic diseases have been enrolled in U-IMD.

The U-IMD protocol was successfully amended for a longer runtime. The official end of the EU funded phase of the project is now 31.07.2021

As a project placed in the public health sector, having health care providers as its Beneficiaries and major Stakeholders and being...

Poster Presentation of U-IMD at the SSIEM 2019.

First meeting of the U-IMD Evaluation Group at the EMG meeting in May 2019 in Lyon.